I am in Houston. I am so glad to be here. My hometown, surrounded by family and friends. I brought my boxes knowing that I would not be going back to Louisiana. We are moving back to Houston! Lord willing, we will be back in our real home soon! It is what we need to do. I need to get my treatment here and I WANT my family with me. So many blessings have made this move back possible!
My doctor called a while back with the results from my tumor marker blood work. They confirmed cancer. But we knew they would. The CA 125 test is what they call the screening test for ovarian cancer. But the problem is, it is made for older, post menopausal women. That is the high risk category so that is who they made it for. For a premenopausal woman, like me, many things can make the test positive.
Well how about that?
Cancer: I am learning that it doesn’t have to be a dirty word. I am going to prove it is it NOT.
Enough wondering and waiting! The day had finally arrived to meet my Oncologist! My mom went with me. Thank the Lord for that! If you ever have to visit a specialist like this I highly encourage you to take someone with you to take notes and support you. It made the day so much better to have her with me! She heard things I didn’t and was comforting to have. A hand to hold. No matter how strong you are, this is scary!
The day of my first appointment, so much happened. It is hard to remember each piece of it. I was at the hospital all day!
One thing that stuck out to me was the variety of people at the hospital. All colors, ages, sizes, shapes, lifestyles, etc. One thing everyone had in common was this: all of the patients there, did NOT WANT to be there. We were all brought together by a common problem. Cancer had shown it’s ugly face in our lives.
M D Anderson Cancer Center is HUGE. I am SO THANKFUL that I am going to get treated at this facility! The patient care team is incredible!
This post is all over the place. That is because, well I am all over the place. My week has been full of information, peeing in cups, being poked, pinched, photographed, in pain, answering questions, and asking questions.
What I learned:
- Ovarian Cancer can not be biopsied. It can expose the cancer and spread it.
- Uterus/Endometrial biopsies HURT!
- You will lose all pride and learn to walk from room to room in a gown that shows your bottom as you walk. Yes it happens often and everyone else is doing it too.
- Everyone needs to see your girl parts. Again, no more pride or being private.
- I have to get over words like vagina. They say that A LOT! This southern girl hates body part words.
- You’ll need lots of tests that do not involve that area of concern.
- You’ll experience EVERY single emotion but it will not all happen at once.
- You NEED a support system when going through this.
- Trans vaginal Ultrasounds are evil.
- Sometimes you have to let people help. They need it. You need it. Let them help!
- ASK for help!
- ASK for prayers. People can not pray or witness the miracle if you do not include them!
- Take it one step at a time! Don’t fast forward in your head. It is very scary and easy to do. Don’t do it!
- LAUGH as much as you can and make others do the same.
The Oncologist performed and ordered more tests to get a better idea of what to expect when she opens me up. All the test do show that I have Cancer. BUT Ovarian Cancer is tricky. They can not stage this cancer until they do the surgery. They can not test the ovaries without removing them. There are still so many unknowns.
Based on my test results and pain the doctor wants to do a full hysterectomy. I am ok with that. I want it ALL out! I am done making babies. They can not do non invasive on my masses. They’ll open me up and test the tissues while I am in surgery. If she needs to remove more, she will. I am ok with that too.
I asked about hormones, but we can’t think about that step yet. Hormones depend on what they find. I didn’t know that. Treatment, including chemotherapy, can not be determined yet either.
ONE step at a time!
Here is what I KNOW: God is the great physician. He can heal this! PRAYER WORKS. I am stepping out of my comfort zone and sharing these very private things with everyone because I need God to work. I need and want prayers. People can not pray or witness the miracle if you do not include them in the journey. So welcome to my journey!
I am going to kick some CANCER booty!!!! I promise! With God on my side…it will happen!